Welcome to Unfiltered – A Kidney Chronicle!
This blog came to be not long after my diagnosis of IgA Nephropathy, a form of Chronic Kidney Disease and is designed with several goals in mind:
- Describe my journey with Chronic Kidney Disease (CKD) and what I’m experiencing in terms of progress and setbacks along the way.
- Help raise awareness of kidney disease in general and specifically protein spilling diseases that fall under the umbrella of Nephrotic Syndrome. This includes my disease of IgA Nephropathy (a.k.a IgAN or Berger’s Disease) as well as other diseases such as Minimal Change Disease, Focal Segmental Glomerulosclerosis (FSGS), and Membranous Nephropathy among others. For some people visiting this site, this will be the first time you have even heard of these diseases. They, along with kidney disease in general aren’t very well publicized,even though CKD is one of the leading causes of death among diseases.
- Promote the resources available for kidney disease patients, both nationally and within the New England area.
- Help establish a regional community among New England based patients to share experiences, information, and support especially for those who may be otherwise isolated and struggling.
Please note I am a patient and not a medical professional in any capacity. Please always check with your doctor and medical team when considering any form of treatments.