In my previous article What I Did On My Summer Vacation I highlighted some of my experiences so far with my involvement in a clinical trial to treat IgA Nephropathy. Clinical trials will be a theme I come back to often going forward as I can’t stress enough the importance of volunteering for them if you are able. It’s the only way to get the necessary treatments into the marketplace.
I saw the following link posted on social media and thought I’d share it here. If the reports are legit, this is another drug that has serious potential to reduce proteinuria. As of this writing it is currently in phase 2. There is real momentum out there that as patients we need to stay on top of!
Just a little reminder that the virtual sessions for what is the IgAN Spark 2020 celebration begin Wednesday 7/8/2020 7:30 – 9:00 PM and will continue each Wednesday of the week through 9/2/2020.
As I’m posting this on 9/7, tomorrow’s presentation will be on the history of IgAN and I’m particularly looking forward to this. I’m hoping to learn some information I haven’t learned yet in some of the other presentations.
Here is a teaser video for the overall Spark event put together of course by the IgA Nephropathy Foundation of America.
While my goal is to pull together other patients who are coping with Chronic Kidney Disease in some form or another, I’d also like to reach out to you healthy people and ensure that you never have to join our ranks.
For all the advances in treatment options that may be coming down the road, do you know what still remains the best treatment for kidney disease?
This is a recent talk at the University of Leicester in the UK. It is a good basic overview of how transplantation is done in general and also adds some interesting IgAN specific information at the end regarding whether or not it comes back post-transplant which is of great interest to me. It’s not too long so give it a look!
In my previous article I left you on a bit of a cliffhanger. While I told you about my diagnosis of Chronic Kidney Disease, I didn’t tell you how I got it. In this article I’ll discuss what my suspected diagnosis was and what we ultimately found out based on my biopsy results. Some questions got answered, only to be followed by more questions.