The organizations listed below vary in areas of focus. Some are dedicated to kidney disease in general while others have a more specific focus. Check the descriptions below to get a better idea of what each group specializes in. If you’re just beginning to learn more about kidney disease in general, start with either the National Kidney Foundation or the American Kidney Fund, both large organizations with resources and advocacy campaigns for kidney disease patients of all types.
- National Kidney Foundation
Created in 1950, this is a major national group focused on providing services and education to patients throughout all the phases of kidney disease. Like the American Kidney Fund (below), they have an extensive website and sponsor a number of activities throughout the year promoting kidney health.
- American Kidney Fund
Like the NKF listed above, a national group focused on the many facets of kidney disease and also providing an extensive set of resources on their website in terms of educational material and they provide services for those patients facing hardships.
- New England Donor Service (NEDS)
New England based organ procurement organization focused on promoting organ donation through education and community outreach.
- The Kidney Project
This is, to quote the homepage “ a national research project with a goal to create a small, surgically implanted, and free-standing bioartificial kidney to treat end stage renal disease (ESRD).” In short, this is a fascinating development that is beginning to show some promise. They do need a lot of funding and support to keep this moving though.
- Nephcure Kidney International
Another national group focused on the many diseases that bring about Nephritis such and Minimal Change Disease and FSGS.
- IgA Nephrology Foundation of America
Started by parents of a child who was diagnosed with IgAN, this group puts a lot of focus on the research side of things. IgAN can’t be cured or prevented at the moment, so their goal is to provide the resources necessary for researchers to make strides.
- The United Network for Organ Sharing (UNOS)
UNOS is a private non-profit that manages the transplant list here in the US. Their website contains a wealth on information on organ donation!
- World Kidney Day
Yes, we even have our own day of the year.