Just a brief (but significant!) update to the previous article regarding the drug coverage legislation making it’s way through Congress. Having already been passed by the House of Representatives recently, today the bill was passed by the Senate.
Call me bias, but this bill is an absolute no-brainer and I applaud both bodies of government for getting this right. I’m not sure if there are any other legislative hurdles for this law at this point, but I suspect it will need to be signed off by the president.
This is a good reminder to myself that as a kidney health advocate and general person who’s lived his whole life in this country, it might serve me well to brush up on the American legislative process. It couldn’t hurt.
The link to the National Kidney Foundation release is below:
It’s rare that I get to say this but, some good news came out of Washington today. The House Of Representatives passed the Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act(H.R. 5534), which to summarize, will guarantee coverage for immunosupression drugs for the life of the transplanted organ. This will still need to pass through the Senate so while we haven’t crossed the finish line yet, this is a great first step.
Some really good news for a change. If you’ve been following the story of Jordan Rhodes, you know he’s been fighting an uphill battle to get a much needed kidney transplant. The good news is he was finally matched with an eligible donor and just underwent successful transplant surgery.
Here’s hoping that everything continues to pan out and the road get’s a little easier from here. You can read more about this on the Facebook page that the family has set up to chronicle his story:
The Kidney Projectreleased a brief update on their Facebook page on March 10 regarding the push toward the clinical trials. In have had some discussions with the FDA already and they expect to have two or three more over the coming months so that they can (hopefully) submit the full application package over the summer.
Based on the tone of the update they sound cautiously optimistic that this is going to move forward, but the reality is it will likely continue to be a slow process. It’s just how it works when you try to bring this sort of product to market. There are a ton of safety requirements that have to be met before they can even think of starting clinical trials so it’s understandable why they have to take a very deliberate pace.
You can read the official update by following this linkto their Facebook page.
Credit for this article goes to the American Kidney Fund Blog where we are introduced to three state legislators from different states (and across party lines) who have one big thing in common.
All three are kidney donors.
This is good news in a couple of ways. First the obvious. A number of people got kidneys from living donors (the best kind). Second, in an age where few people have confidence in the political system, it’s a nice reminder that government is made up of people who actually do go into service with the goal of making a difference. Some stray over time and others make a real effort to move the ball downfield. These are a few examples.
In keeping with the executive order Advancing American Kidney Health, HHS has released a proposed rule intended to reduce financial barriers to living organ donation by expanding reimbursable expenses for kidney donors...
Hopefully we’ll see the impact from this sooner than later!
A friend shared this on Facebook. I only know what I read in the article but his situation sounds pretty severe. I hope they are able to work around his complications and get him the transplant he needs. He’s too young to be dealt that hand.
While Jordan is still waiting, there is some positive news to report. There have already been 1200 applications requested by people who are interested in donating him a kidney. Hopefully out of all these people there will be at least one good match and they can go forward with the procedure.
Just an update for those who want to follow Jordan’s story and progress, his family has a Facebook page devoted to the search for a matching kidney and there have been some updates. People are volunteering, it is a question of finding a match. You can keep up with his story and the link below.