Category Archives: Events

Articles on special events, fundraisers, classes, meetups, etc

Spark 2021 Announced!

Posted on by
Reply

The IgA Nephropathy Foundation of America has announced the Spark 2021 IgAN Symposium which will once again be held virtually. This year it will be a one day event taking place on Saturday August 21, 2021 from 9:45 AM to 5:00 PM.

You can check out the official agenda page here.

Please note that as of this writing registration information hasn’t been made available, but once it is you will be able to find it at the above link. I will also post more details of this event as the year goes on.

Please consider attending if you or a loved one have been impacted by IgA Nephropathy. I can’t stress how important it is to become educated on this life altering disease.

If you have any questions feel free to reach out to me either via email or in the comments below.

Nephcure Patient Summit 2021

Posted on by
Reply

A Global Online Gathering

Nephcure Kidney International will be hosting their annual summit gathering on Sunday May 16, 2021 from 12:00 PM to 4:00 PM. The event is going to be held virtually this year.

This is a great opportunity for patients from across the globe to gather and learn about some of the latest advancements in research and treatments. This will also serve as a virtual ‘meetup’ for patients with nephrotic syndrome to share their experience with the diseases that brought them here.

Even better, this is a free event! If you are interested in attending you can sign up using the link below:

https://events.philanthropyrefined.com/e/NephcurePatientSummit

Nephcure’s 2021 Boston Countdown To A Cure

Posted on by
Reply

Just a quick note here that Nephcure has announced the annual Countdown To A Cure here in Boston. Like a lot of events last year, the 2020 event was a virtual event due to Covid-19. This year it is scheduled to take place in-person at the Boston Marriott Quincy, assuming the pandemic is in under control by then.

Date and location are as follows:

Boston Marriott Quincy
Saturday September 18, 2021

If you are interested in attending or sponsoring, you can find more information below:

https://give.nephcure.org/CountdownBoston/Donate/Tickets

IgA Nephropathy and You

Posted on by
Reply

It’s not easy to get new information regarding current research in IgA Nephropathy. So with that in mind, I wanted to give a heads up to everyone who wants to learn more about where things stand currently and where they may be headed when it comes IgAN treatment and research.

IgA Nephropathy and You is a free live webinar brought to us by Nephcure Kidney International and it will be taking place on Friday May 15, 2020 from 4:00 – 5:00 PM EDT. You can check out the full flyer below, but I just wanted to point out that this is a rare opportunity to be brought up to speed on current developments.

If you are interested in attending, please be sure to register before hand. The link is provided in the flyer. I hope you’ll be there!

NephCureU.IgAN.May15Download

Update:

The webinar is available down below and runs about 2 hours. Please check it out if you are interested in where things stand in the field of IgA Nephropathy. Leave any comments and down below.