As I meet and read about other kidney disease patients one of the chief complaints I hear is that the people around them have a hard time believing they’re dealing with a serious illness. It’s not that they don’t care, it’s just that they expect people with chronic diseases to look well, more sickly. Some patients battling kidney disease have a rather unique problem in that they look a little too good.Continue reading
How YOU Can Make A Difference For Clinical Trials
I’m way overdue for an update here on what I’ve been up to over the past several months. I’m happy to report that things have been, well, quiet. Good quiet. With the gradual opening of the state after the lockdown, I’ve done a good job of minimizing my exposure to others for the most part. In spite of the pandemic, I haven’t exactly been standing still.Continue reading
Welcome back to those who have been following my journey and also a big welcome for those of you who are visiting this site for the first time. I hope you’ll read up on the rest of my ramblings and follow along. Between this site and our companion page on Facebook it’s good to see some new visitors giving us a look. Be sure to follow this site to stay up to date with my health journey and more importantly the thing everyone wants more of – my opinions.Continue reading
While my goal is to pull together other patients who are coping with Chronic Kidney Disease in some form or another, I’d also like to reach out to you healthy people and ensure that you never have to join our ranks.
For all the advances in treatment options that may be coming down the road, do you know what still remains the best treatment for kidney disease?
Not getting it at all.Continue reading
So if you’ve been following my story (and for the sake of this article I’m going to assume you have), you know that over the summer of 2019 I was diagnosed with IgA Nephropathy, a disease that while considered rare compared to some of the sexier diseases, is also the third leading cause of Chronic Kidney Disease (after Diabetes and High Blood Pressure).
Having been diagnosed with a disease I knew little about, yet knowing it can and often does have serious implications for the patient long-term, my first reaction was, well, paralysis. This was my first time being faced with a life altering – and potentially life threatening – disease. This was the sort of thing that only happens to other people, not me. I always assumed I was going to go out the same way I had lived – in a blaze of stupidity. Like falling down an exposed manhole in busy downtown Haverhill. Or being attacked by a hungry black bear (also in busy downtown Haverhill for some odd reason). Getting taken out by a disease? That’s for other people.
The Big Reveal
In my previous article I left you on a bit of a cliffhanger. While I told you about my diagnosis of Chronic Kidney Disease, I didn’t tell you how I got it. In this article I’ll discuss what my suspected diagnosis was and what we ultimately found out based on my biopsy results. Some questions got answered, only to be followed by more questions.
I walked into my physician’s office for my six month checkup not really expecting it to be any different than it had been for the past few years. Lose weight. Take your cholesterol meds. Stay on your blood pressure medication. I expected the instructions to be the same. Outside of my weight issue and the fact that my blood pressure – which I never had any problems with before – had suddenly shot up before the last visit, I was actually in pretty good health. I was beginning to lose weight, albeit rather slowly. I didn’t take drugs and I drank moderately at most. What could go wrong?
Everything went pretty much according to script.
Until we got to the end.