Just a brief (but significant!) update to the previous article regarding the drug coverage legislation making it’s way through Congress. Having already been passed by the House of Representatives recently, today the bill was passed by the Senate.
Call me bias, but this bill is an absolute no-brainer and I applaud both bodies of government for getting this right. I’m not sure if there are any other legislative hurdles for this law at this point, but I suspect it will need to be signed off by the president.
This is a good reminder to myself that as a kidney health advocate and general person who’s lived his whole life in this country, it might serve me well to brush up on the American legislative process. It couldn’t hurt.
The link to the National Kidney Foundation release is below:
It’s rare that I get to say this but, some good news came out of Washington today. The House Of Representatives passed the Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act(H.R. 5534), which to summarize, will guarantee coverage for immunosupression drugs for the life of the transplanted organ. This will still need to pass through the Senate so while we haven’t crossed the finish line yet, this is a great first step.
Tune in on Wednesday 12/9/2020 at 7:30 AM Est on Lifetime channel for the Beyond The Mystery segment of The Balancing Act. Beyond The Mystery is segment they do on rare and genetic diseases and for this one they will include a focus on IgA Nephropathy.
I’ll admit I’m new to this program and hadn’t heard of it before it was posted to the IgAN Foundation’s Facebook group, but now I’m interested in seeing what they do going forward.
Be sure to check it out!
Edit: I originally posted that this would be on at 7:30 PM which was wrong. This will be 7:30 AM. It’s a morning show. I need to make sure I’m fully awake when posting these things. Sorry for any confusion.
The episode has aired and the IgA Nephropathy Foundation Of America has the segment (just under 10 minutes) on their Youtube channel. I recommend checking out the video (linked below) and the rest of the videos they have on their channel.
Below is a link to an episode of The New Normal (an online documentary series). This roughly five minute episode takes a look at how the emergence of Covid-19 has impacted those on dialysis. Unlike patients with some other conditions, patients in kidney failure don’t have the option to stay home and put off dialysis treatment, even in the face of a pandemic.
This informative piece does a good job showcasing the physical and emotional toll this takes not only on the patients, but also the caregivers and the risk their loved ones take on as part of the process. It’s a short episode but worth checking out: